LEMS, a rare neuromuscular disease, that can inhibit movement and affects approximately 1 in 100,000, has a medication price tag annually, going forward, of $375,000. One woman, who has this disease and has been receiving this medication, which has helped her tremendously, for several years free, because of a special program. The medication, named FIRDAPSE ( a slightly modified version), will tout this hefty price. Read more here. CNN's Wayne Drash, February 20, 2019: $375,000 Price Leads Disabled Mom To Ration Meds.